Pierre Robin Australia Inc

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My son Austin is an identical twin with PRS and now just over 8mths. He will not take any solids whatsoever. I have been trying since he was 5mths. I cannot seem to get any food between his tongue and the roof of his mouth. Most of the time anyway he has his tongue sticking out and when i attempt to feed him he j...

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Has anyone out there had weight gain issues after the ng tube removed? Alice lost 200g after the ng came out, then it took her 3 months to get that back. Then after her cleft operation she lost 200g again, now 3 weeks later she has lost another 20g. Does anyone else have problem with their bub gaining? She e...

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congrates to all feeding babys!my 7month old just doesnt want to take any bottle predominately the haberman has been used.its so frustrating i know his capable cause at times he wil go a few weeks here and there and suck up to 150mls. He now just chews the teats teething seems to be the prob but frustatin...

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Our son Ethan has only just got rid of his tube at 7 months old and had you asked me 2 weeks ago if I saw him being without the tube now, I would have cried thinking "if only"! He has however done it!! Ethan has a cleft of the soft and hard palate and also suffers from reflux. He has had the feeding tube in since da...

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Harry had a ngt and was using a haberman bottle. After about six months, Harry's ngt came out one day and that was it, no more ngt! The cleft oordinator at the RCH said he didn't need to have it replaced because he could drink a full bottle and was eating s ome solids. Whilst Harry was in hospital, a lot of the...

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Ok ive read the posts on parent having trouble feeding with the Hauberman feeder. This is what i do all the time now to feed my daughter (4 months old) and get a full feed (180ml) into her in under 15mins including burp breaks. This works for my child, and hopefully it can work for yours too. What you need is...

administrator · administrator

Has anyone used the habermann bottle. Any luck with it. Alice has had it for nearly 6 months now and the average I get into her orally is 40ml. The rest down the ng tube. It is as if she is more just not interested. I've tried to starve her thinking she will surely drink, but no this doesn't make a difference....

administrator · administrator

I have a 9 month old (corrected age) 11 months birth age PRS baby and I found feeding a struggle to say the least. My son Flint was naso gastric feed from birth and never given the chance to be hungry and know what that felt like. I tried everything I could get my hands on and would retry them all again in a few m...

Topic		Started By	Replies	Views	Last Post
	HISTORICAL POST: Solids Kim 3/27/2011 4:36:27 PM (Preview) My son Austin is an identical twin with PRS and now just over 8mths. He will not take any solids whatsoever. I have been trying since he was 5mths. I cannot seem to get any food between his tongue and the roof of his mouth. Most of the time anyway he has his tongue sticking out and when i attempt to feed him he j...	administrator	3	1035	Mon May 2 18:10 2011 by administrator
	HISTORICAL POST: Weight issues Charmaine 12/3/2009 6:10:56 PM (Preview) Has anyone out there had weight gain issues after the ng tube removed? Alice lost 200g after the ng came out, then it took her 3 months to get that back. Then after her cleft operation she lost 200g again, now 3 weeks later she has lost another 20g. Does anyone else have problem with their bub gaining? She e...	administrator	2	826	Mon May 2 18:08 2011 by administrator
	HISTORICAL POST: feeding inconsistant deb 11/13/2009 9:03:54 PM (Preview) congrates to all feeding babys!my 7month old just doesnt want to take any bottle predominately the haberman has been used.its so frustrating i know his capable cause at times he wil go a few weeks here and there and suck up to 150mls. He now just chews the teats teething seems to be the prob but frustatin...	administrator	1	747	Mon May 2 18:06 2011 by administrator
	HISTORICAL POST: Tube Feeding Ann 10/5/2009 11:31:02 PM (Preview) Our son Ethan has only just got rid of his tube at 7 months old and had you asked me 2 weeks ago if I saw him being without the tube now, I would have cried thinking "if only"! He has however done it!! Ethan has a cleft of the soft and hard palate and also suffers from reflux. He has had the feeding tube in since da...	administrator	2	739	Mon May 2 18:05 2011 by administrator
	HISTORICAL POST: bottle feeding michelle 9/24/2009 11:09:21 AM (Preview) Harry had a ngt and was using a haberman bottle. After about six months, Harry's ngt came out one day and that was it, no more ngt! The cleft oordinator at the RCH said he didn't need to have it replaced because he could drink a full bottle and was eating s ome solids. Whilst Harry was in hospital, a lot of the...	administrator	0	715	Mon May 2 18:03 2011 by administrator
	HISTORICAL POST: Power feeding !! Mels Man 9/23/2009 1:50:08 PM (Preview) Ok ive read the posts on parent having trouble feeding with the Hauberman feeder. This is what i do all the time now to feed my daughter (4 months old) and get a full feed (180ml) into her in under 15mins including burp breaks. This works for my child, and hopefully it can work for yours too. What you need is...	administrator	3	736	Mon May 2 18:02 2011 by administrator
	HISTORICAL POST: Feeding frustration- Charmaine 1/9/2011 8:37:57 PM (Preview) Has anyone used the habermann bottle. Any luck with it. Alice has had it for nearly 6 months now and the average I get into her orally is 40ml. The rest down the ng tube. It is as if she is more just not interested. I've tried to starve her thinking she will surely drink, but no this doesn't make a difference....	administrator	12	848	Mon May 2 18:00 2011 by administrator
	HISTORICAL POST: Feeding Nat 8/26/2009 2:09:30 PM (Preview) I have a 9 month old (corrected age) 11 months birth age PRS baby and I found feeding a struggle to say the least. My son Flint was naso gastric feed from birth and never given the chance to be hungry and know what that felt like. I tried everything I could get my hands on and would retry them all again in a few m...	administrator	3	763	Thu Apr 7 17:11 2011 by administrator
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