Pierre Robin Australia Inc

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Hi Guys and Gals, Just curious in how everybodies kids are going regarding thier speech?? Does anybody do formal speech? Does anybodies kids have trouble with particular words and how did you get around this?? Would love any ideas that you all have with your words of experience and wisdom. Thanks guy...

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My daughter Mia had her cleft repair on the 14th December 2009. It has been a complete success and we were extremely lucky to have such a brilliant surgeon at PHM hospital. Our only hurdle is to get Mia to suck normally again as the spoon feeder has taken that ability away. 2 steps forward......one step b...

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Well Alice is ready for her cleft surgery on Friday (4 more sleeps) She is getting grommits done at the same time as well. Needless to say mum and dad are stressed and she has no idea what is going on! Fingers and toes are crossed for a speedy recovery.

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My son Harry had his soft cleft palate repaired at 19 monts old. He was due to have it repaired at 18 months old and was booked in but, was cancelled beacuse he had a cold

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I am wondering when other kids with PRS are having their palletes repaired. We were told 9 to 12 months old, but more likely the 12months mark. I see a lot of other kids are done later. We go back to Brisbane this month and see the specialists, hopefully they will give us a rough date. And also is it common fo...

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Hi All, Olivia had her cleft repair 5 weeks ago. All in all it was not the worst hospital experience we have had together. Definitely the sleep studies are much, much worse!!! At least post surgery there were plenty of pain killers to keep her comfortable.The staff at the childrens hospital Westmead w...

Topic		Started By	Replies	Views	Last Post
	HISTORICAL POST: Speech Natalie 7/12/2010 8:08:17 PM (Preview) Hi Guys and Gals, Just curious in how everybodies kids are going regarding thier speech?? Does anybody do formal speech? Does anybodies kids have trouble with particular words and how did you get around this?? Would love any ideas that you all have with your words of experience and wisdom. Thanks guy...	administrator	1	763	Mon May 2 18:23 2011 by administrator
	HISTORICAL POST: Succesful Surgery! Mel 8/23/2010 11:40:13 PM (Preview) My daughter Mia had her cleft repair on the 14th December 2009. It has been a complete success and we were extremely lucky to have such a brilliant surgeon at PHM hospital. Our only hurdle is to get Mia to suck normally again as the spoon feeder has taken that ability away. 2 steps forward......one step b...	administrator	8	686	Mon May 2 18:22 2011 by administrator
	HISTORICAL POST: Surgery Charmaine 11/5/2009 2:34:10 PM (Preview) Well Alice is ready for her cleft surgery on Friday (4 more sleeps) She is getting grommits done at the same time as well. Needless to say mum and dad are stressed and she has no idea what is going on! Fingers and toes are crossed for a speedy recovery.	administrator	2	513	Mon May 2 18:19 2011 by administrator
	HISTORICAL POST: cleft repair michelle 9/24/2009 10:21:07 PM (Preview) My son Harry had his soft cleft palate repaired at 19 monts old. He was due to have it repaired at 18 months old and was booked in but, was cancelled beacuse he had a cold	administrator	0	514	Mon May 2 18:18 2011 by administrator
	HISTORICAL POST: Age for cleft repair Charmaine 11/16/2010 12:51:30 PM (Preview) I am wondering when other kids with PRS are having their palletes repaired. We were told 9 to 12 months old, but more likely the 12months mark. I see a lot of other kids are done later. We go back to Brisbane this month and see the specialists, hopefully they will give us a rough date. And also is it common fo...	administrator	4	548	Mon May 2 18:16 2011 by administrator
	HISTORICAL POST: cleft repair Laurel 9/21/2010 12:08:22 AM (Preview) Hi All, Olivia had her cleft repair 5 weeks ago. All in all it was not the worst hospital experience we have had together. Definitely the sleep studies are much, much worse!!! At least post surgery there were plenty of pain killers to keep her comfortable.The staff at the childrens hospital Westmead w...	administrator	9	552	Mon May 2 18:14 2011 by administrator
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