Pierre Robin Australia Inc

Bav1975 · Bav1975

My little man Harry has PRS, and we only recently discoverd that he has Severe Obstructive Apnoea. He is 3 and half years old, and they only worked this out a couple months ago. What I find very frustrating is the fact that it took both myself and my wife to really push for Harry's doctors for a sleep stud...

administrator · administrator

gosh im so envious that other babys with prs are actually drinking every story i read it always starts of with the normal struggle getting our prs babys to feed properly but eventually it seems like alot of babys end up getting feeding tubes out before there cleft repair. At the moment i feel like my baby...

administrator · administrator

Hi my name is Michelle. My 22 month old Harry has a soft cleft palate and PRS. I remember a few weeks after he was born, he was still in the special care nursery. I was talking to the midwives about Harry. One of the midwives said ït's only a cleft palate". I was so cross. Most of the midwives were lovely and ve...

administrator · administrator

Today I was told by a professional in our 'team' that my gorgeous daughter looks like 'a typical sticklers'. I was stunned to say the least. We have been through numerous tests to rule out sticklers. But his delivery and nonchalant attitude to what he had just said to me was astounding. I am happy to have...

Topic		Started By	Replies	Views	Last Post
	Living in a Regional Town - The hassles of not getting help!!!!! (Preview) My little man Harry has PRS, and we only recently discoverd that he has Severe Obstructive Apnoea. He is 3 and half years old, and they only worked this out a couple months ago. What I find very frustrating is the fact that it took both myself and my wife to really push for Harry's doctors for a sleep stud...	Bav1975	2	824	Mon Nov 7 01:15 2011 by Miss Red
	HISTORICAL POST: feels like ng will be in for the rest of his life! frustrated 10/3/2010 9:18:35 AM (Preview) gosh im so envious that other babys with prs are actually drinking every story i read it always starts of with the normal struggle getting our prs babys to feed properly but eventually it seems like alot of babys end up getting feeding tubes out before there cleft repair. At the moment i feel like my baby...	administrator	4	741	Tue May 3 08:27 2011 by administrator
	HISTORICAL POST: nurses michelle 5/5/2010 9:35:49 AM (Preview) Hi my name is Michelle. My 22 month old Harry has a soft cleft palate and PRS. I remember a few weeks after he was born, he was still in the special care nursery. I was talking to the midwives about Harry. One of the midwives said ït's only a cleft palate". I was so cross. Most of the midwives were lovely and ve...	administrator	8	625	Tue May 3 08:24 2011 by administrator
	HISTORICAL POST: arrrrrh LS 9/18/2010 2:44:32 PM (Preview) Today I was told by a professional in our 'team' that my gorgeous daughter looks like 'a typical sticklers'. I was stunned to say the least. We have been through numerous tests to rule out sticklers. But his delivery and nonchalant attitude to what he had just said to me was astounding. I am happy to have...	administrator	7	814	Tue May 3 08:21 2011 by administrator
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