Hello everyone. Our daughter Alice was born 17th December 2008 with PRS. She was flown from the Gympie Hospital down to the Royal Children's in Brisbane. It was 2 days before I was able to get down there and see our daughter. She was kept in ICU for a week and given a nasopharangeal tube(if that's how you spell it!) and also the ng tube, in the other nostril. She spent a total of 3 weeks in hospital before we could come home. She is now nearly 5 months old. The npt tube came out at the end of April and Alice spent a night in hospital and her oxygen levels monitered. She passed with flying colours...hooray. So now we just have to get her feeding a little better orally. She has up to 50ml, and the rest goes down the tube. Palate surgery is next on our agenda. Fingers crossed this all goes smoothly!
