Hi guys, Thank you all so much for your well wishes. Balin's distraction was carried out on Tuesday and was a success. He unfortunately developed a lung infection in the days following and we have been battling that as well. I won't lie, it's been tough, but much of what we have experienced has been due to the infection causing issues with his airway and intubation. He is also a "mighty mouse" and has proved very difficult to sedate. The doctors and shocked and amazed at the amount of sedation he is requiring to keep him down! Go son..that's the fighting spirit!! We are hoping that things are turning around for him today after a long week. Mick and i have been doing some great work bedside and look forward to sharing some great information and real life pictures with you all. Thanks again to everyone for your emails and support. Jacinta.