Hi, My name is Emily I have a daughter who is 23 weeks old with Pierre Robin Sequence. She has to sleep on her tummy, so finding a pram is difficult, does anyone know of a pram that suits PRS babies who are on their tummies?
Hi Emily My son Ethan has PRS and will be turning 1 next month (Feb). He spent the first 4 weeks in hospital but luckily was ok in the pram and car seat etc when on his back. I a taking it that your daughter has desats when she is on her back, is that correct? We had the bassinet on the pram and used that for Ethan in the earlier days (we used to sleep him in there on a night too so we could have him closer to our bedroom cause he was on a corrometrics monitor to monitor oxygen/aponeas etc and also had reflux, so it meant we could hear him in the night if/when he threw up and needed changing etc. If you dont already have one, and your daughter will still fit in it, i would firstly suggest a bassinet, otherwise a stroller or pram where it lays back fully flat, some of them you have a plastic bit near the footrest, so maybe you could have that lifted up in case she tries to wiggle down, if you have have problems strapping her in? Prob not much help, but just some thoughts. Good luck xx
